« I would do anything in my power for the health of my little brother!»
After our daughter, Sophia-Rose, was born prematurely, we thought we would never have to go through such anxiety again. We were mistaken. Our son also arrived prematurely, at 30 weeks, weighing 1.4 kilograms. But while our daughter grew up healthy, Jayden wasn’t so lucky. During the very first hours of his life, he had severe brain hemorrhaging. He was kept under observation, but since his state of health did not deteriorate, risky surgery was avoided. We had no idea how our son would develop and if he would be gravely affected.
Over the months, we were relieved to see that his cognitive capacities were intact. However, his arm movements were jerky, he was unable to sit up and his legs could not bear his weight. At that time, we also realized how strong our little guy was, and how determined he was to stand on his own two feet!
Since the age of nine months and today still, Jayden has undergone two to five physiotherapy and occupational therapy treatments every week. The use of his arms has returned, and by the age of two, he was able to move forward a little on all fours.
To make his growing legs a little more flexible, during his entire growth period he will alternately receive Botox injections and medical treatments that consist of making tiny incisions in his calf muscles. Every time, these operations leave Jayden in plaster casts for six weeks, and afterwards he has to learn to walk all over again.
But our little man has a will of iron. Jayden is only five years old but has so far learned to walk four times! As parents, we place great hope in research. Already, it has shown us that it is possible to improve the condition of children like Jayden who live with lasting effects of premature birth.